CRPS - Complex Regional Pain Syndrome
The pain disorder is a rare condition characterized as one of the most severe levels of pain – 42 out of a possible 50 on the McGill University Pain Scale.
Fewer than 200,000 USA Cases per year with treatments that can help, but the condition cannot be cured at this point.
Living Through the Pain: How Sunlighten Saunas Help Calm My Severe CRPS Nerve Pain Flare Ups:
I went through workmen’s compensation and learned new skills. I chose computer technology and graphic design. I loved it! I became a teacher with the same program and taught others who were injured at their jobs. My real passion started in 2001 as I discovered the world of search engine optimization and shifted my career in that direction. All the while, I was in pain. I had one last knee surgery to release some scar tissue that was limiting my range of motion. The surgeon told my wife that something was wrong with my knee cap, that it was soft and folded easy. Like a virus was attacking my body. Little did we know, that was the start of my CRPS.
My family and I moved to Kansas City in 2005 to start a new job. My pain started to increase. I had no idea where this pain was coming from. It was not radiating from where I had my injury. It got so bad that sometimes even the fan blowing the hair on my legs caused excruciating pain. It was not until 2006 did I get a diagnosis of CRPS. I was still able to work and further my education with Google certifications. I became involved with the Google Top Contributor program and learned as much as possible. Life moved forward. I had a spinal cord stimulator implanted to help with my pain, but it did not work. So they moved the leads down, still did not work. I had three surgeries on my back all related to a spinal cord stimulator. Hindsight is 20/20, these surgeries were a mistake.
CRPS hit me like a ton of bricks and I was unable to work in an office. I worked remotely and did consulting work. I started falling due to severe pain, and needed to walk with a cane. People looked at me differently. To them I was broken. It was not until my pain doctor wanted me to use a walker,and said I was not allowed to drive, did I start to take control of my life. That was my personal turning point.
I was not about to use a walker. I went to the chiropractors at ASFCA (Advanced Sports & Family Chiropractor & Acupuncture) once a week. I started to walk short distances, to the light post at the end of the street and back, then two blocks and back. I slowly increased my distances and titrated off of all my pain medications, which was insanely hard. I stayed on two muscle relaxers to help with the muscle spasms, and added in supplements like Tumeric, Vitamin B Complex and large doses of Vitamin C.
My walking is how I got involved with the Google Local Guide Program. Since I was now off all the pain medication, I was able to drive again and took my daughter to work on the weekends. I would park the car and go walk around. I started mapping the area around for the Google Local Guide Program. In the beginning I could barely walk 1000 steps a day. But soon I was up to 10,000 steps and beyond. I was ready to reenter the workforce.
The exact cause of CRPS (Complex Regional Pain Syndrome) & RSD (Reflex Sympathetic Dystrophy) is not well understood by the medical industry, however more research has been done in recent years to help those that suffer from this disability live a more comfortable life with the use of medication along with other treatments such as nerve blocks, spinal cord stimulators and other therapies.
Complex Regional Pain Syndrome, CRPS, formerly known as RSD Reflex Sympathetic Dystrophy, is a progressive disease of the Autonomic Nervous System, and more specifically, the Sympathetic Nervous System.
The pain is characterized as constant, extremely intense, and out of proportion to the original injury. The pain is typically accompanied by swelling, skin changes, extreme sensitivity, and can often be debilitating. It usually affects one or more of the four limbs but can occur in any part of the body and in over 70% of the victims it spreads to additional areas.
What does the pain feel like for me?
Imagine you hit your finger with a hammer and consider that pain throughout your entire body 24/7 that is the pain, I have lived through for over 20 years.
“It was not until I started working for Sunlighten that I truly understood their technology.”
In 2017 I was hired at Sunlighten. Every employee is encouraged to use the saunas in the Sunlighten Day Spa, so I tried out the mPulse 3-in-1 infrared sauna. Before my first session, I was in pain, but, after this one session, my pain had calmed. I went back again a few days later and confirmed that when I was in the middle of a pain flare, the infrared saunas helped calm them.
I created a routine and used the saunas three times a week. Normally, I sit and relax with meditation music and focused on my breathing.
Bringing Sunlighten Saunas Home: Sunlighten’s Solo System for Small Spaces
I live in an apartment, so space is limited. Sunlighten has a Far Infrared Portable Solo System with 365 degrees of far infrared. The owners of company know about my condition and let me take one home for regular use.
During the winter months, the cold feels like it is reaching my bones. When I lay in the Solo System, I am warmed from the inside out and my pain flares are calmed.
I still have my pain flare-ups, especially in the evenings. I am blessed to have such an awesome support system from my family and friends during some very challenging years.
Every month, people are walking, fundraising or creating ribbons for something. November is no different. November for some is deemed NERVEmber or GoORANGE for CRPS Awareness. The NEVREmber movement was started by Barby Ingle in 2009. NERVEmber is about RSD/CRPS/Nerve Pain/Neuropathy awareness and its many faces. There are hundreds of disorders and diseases that cause nerve pain, and many of them, doctors are still just scratching the surface with how to control the pain.
For many, there is no calming their pain, only monthly trips to their pain doctors for prescriptions of pain medications and muscle relaxants. Pain can take complete control over someone’s life and turn it upside down.
CRPS Awareness – Stay Strong There Is Hope
Additional Resources to Learn More:
The Healing Power of Sunlighten Infrared Saunas
Sunlighten saunas cannot reverse CRPS or other nerve pain disorders, but the systems can reduce pain flares, and help increase a person’s quality of life.
“For centuries healthcare providers have used topical heat to relieve minor aches and pains, but today we are just beginning to understand the full range of therapeutic benefits that heat offers,” said pain expert Peter Vicente, Ph.D., past president of the American Pain Society and Clinical Health Psychologist.
“Through new clinical research, we have found that heat activates complex neurological, vascular and metabolic mechanisms to mediate the transmission of pain signals and effectively provide relief for a variety of pain conditions.
Find Your Personal Pain Relief: Sunlighten Saunas Solocarbon® Far Infrared Technology
Sunlighten’s Solocarbon® Far Infrared Therapy delivers health benefits such as; reduced blood pressure, weight loss, and detoxification. Infrared rays help the body naturally reduce pain and inflammation by penetrating joints, muscles and tissues. Many people, when in pain, want to be warm. The solocarbon® technology is proven to raise the core body temperature by at least 3 degrees. This not only warms the body, but also helps calm the nerves, which reduces pain.